Wednesday 9th July 2008

Its been two weeks since I last posted! That time flew past! Things are certainly busy here.

I did my good mummy duty last Thursday and hit the Annual Toy Sales! There wasnt much to be had this year but I got Bailey a giant Fire Truck and Niamh a cute doll for her pram. It was very civilized this year, no trolley rage lol, but then I was there at 7.30am :)

I went to a Growth and Development talk at the hospital yesterday (see, still can't keep away). It was interesting and has prompted me to put down some things that may be useful as we were asked for our input. One of the parents suggested a support group for after we leave the hospital. I think this is a great idea. There is premie playgroup which I have yet to go to, but I think there is room for more. Bec has been an amazing, constant support for us parents and the coffee mornings were excellent. I always really looked forward to them. She is about to have her second baby tomorrow, so a huge congratulations to her and her family. Hope it all goes really well!! xx

We had some bad news today, Niamh has bronchiolitis. She had a cold for the last couple of days, which she has dealt with before, but this morning she woke me up at 3am wheezing. She was struggling for breath and choking on phlegm which sounded horrible. I was awake for the day then and watched her while she slept to make sure she was alright. I phoned her wonderful paediatrician this morning and he saw us as soon as he could. I cannot speak highly enough of Andy, he always makes time for us and is brilliant. Info on Brochiolitis is here: http://www.rch.org.au/rchcpg/index.cfm?doc_id=9512

We have to feed little and often so she doesnt get tired or bring it back up, and let her rest. There isnt much else we can do at the moment. Her oximetry was good (96) Anything above 93 seems to be good so I hope it stays that way. I dont think I could cope if she had to be hospitalised, and especially ventilated, not after everything she has gone through. I keep telling her she will be fine and get through this so lets hope her fighting spirit is still alive and well!

I am in hospital tomorrow having an endoscopy, it never ends does it? Not looking forward to that but we need to find out what causes the pain. I had the worst attack ever, about 3 weeks ago and was bringing up bright, yellow bile and nothing else. It was terrible, Anthony wanted to take me to hospital, but ironically I was too ill. We called out a doctor instead, but of course I felt a lot better by then.

On Friday we are back at the hospital once again for Niamhs eyes. Fingers crossed this is something we can move on from at last.

Time for sleep.